If you live in New York State, there’s a new health care sheriff in town – us!
A brand new website has been launched for a new campaign called New Yorkers for Patient & Family Empowerment (Patient & Family campaign), a joint project of the New York Public Interest Research Group (NYPIRG) and the Center for Justice & Democracy. The site is all about empowering us, the patient (as well as families and caregivers), as we interact with the increasingly complex healthcare system, strengthening our access to information and improving healthcare quality and safety.
Writes Patti Singer, health reporter at Rochester’s Democrat and Chronicle, the site “provides links to state data on hospitals and nursing homes. That information can be a little dense to the uninitiated, but it’s worth the slog to get your bearings. The site provides links to complaint lines and services such as respite for people caring for elderly loved one. Explore for yourself at http://www.patientandfamily.org/."
There is information about filing complaints about hospitals, nursing homes, adult homes, and managed care. There are links to websites that allow consumers to compare safety information on doctors, hospitals, and nursing homes. And it’s arrival on the scene is none too soon. As the website notes,
A dozen years have passed since the Institute of Medicine released its shocking 1999 report, To Err Is Human, yet little has changed in the daily experience of patients in hospitals and other medical centers. That report concluded that between 44,000 and 98,000 Americans die each year from medical errors — the rough equivalent of the downing of one jumbo jet per day — making medical errors the leading cause of death in the United States. It cited medical errors as a major factor in the nation's high health care costs, estimating the annual cost at $17 million or more.
Despite this clarion call for safety, a November 2010 report by the Health & Human Services Inspector General found that one out of every seven hospitalized Medicare beneficiaries is seriously harmed in the course of their care, and at least 44 percent of these events are preventable. So while some health care providers have improved safety, substantial risks remain unaddressed and new risks continue to arise.
This continued failure to address recurring problems of patient safety is unacceptable. Promises and assurances that health system providers are "doing the best they can" are not enough. The New York Public Interest Research Group (NYPIRG) and the Center for Justice & Democracy (CJ&D) have worked in coalition on many occasions over the years to protect patients' rights and promote transparency in healthcare. In light of the 2010 Inspector General report's disturbing findings, our groups realized that a more sustained effort is needed. Our organizations have jointly launched New Yorkers for Patient & Family Empowerment in order to focus greater attention on these issues and to empower patients and their loved ones to achieve greater safety and dignity for patients.
Yet another movement worth spreading around the country!



